British Paediatric Neurology Association
Minutes of the Annual General Meeting
Held at Sheffield Hallam University
on Sunday 25 January 2004

Click here for the 2003 Annual General Meeting minutes

The President opened the AGM by expressing our regret and condolences at the death of Professor Roger Robinson. Professor Robinson made enormous contributions to Paediatric Neurology. We had asked permission of his widow to remember him at the AGM.

He also reported that Dr Gordon was unable to attend the AGM following injuries received in a road traffic accident and expressed the Association's good wishes for his recovery.

Finally, he highlighted Martin Bax's retirement with the sincere thanks of the Association for his work and recognition of the big contribution he has made to British and International Paediatric Neurology.

  1. Apologies
    Drs Bax and Jardine.

  2. Previous Minutes
    Dr Whitehouse asked that paragraph 11 (Audit) be modified as follows:
    Dr Pike changed to Dr Peake; the sentence “the study on dancing eye syndrome has proved complex to set up because of the requirement for local researches”, changed to, “the study on dancing eye syndrome has proved complex to set up because of the requirement for local research ethic committees approval.
    Paragraph 12: Governance - change Dr Cross to Dr Whitehouse.

    Amended minutes will be posted on the website, but will not be circulated in a paper form.

  3. Constitutional Changes
    The changes to the constitution were proposed by Professor Brian Neville and seconded by Dr Karen Whiting. The new constitution was accepted unanimously. Dr Whitehouse pointed out that the changes restricted function such as audit and governance to current Deanery Advisers. The President suggested adding the phrase 'or co-opted as necessary' to the end of paragraph 5A. Dr Baxter seconded this and it was also agreed unanimously. The new constitution will be posted on the website.

    Election of Officers
    Dr Kennedy will assume the presidency following the AGM. Dr Ferrie was elected unopposed to the position of Secretary. There was a paper vote for the position of Assistant Secretary. Dr Robert McWilliam was elected with 32 votes. Dr Phil Jardine received 19 votes.

  4. President's Report
    New President
    The President outlined the need to define a patient pathway for epilepsy with details of the interactions between primary, secondary, tertiary and quaternary medical care, education and social services. A document has already been submitted to the Chief Medical Officer and has since been updated by the Epilepsy Interest Group. The updated documented will be submitted to the Governance Group to check its appropriateness and that there is no conflict with NICE or SIGN guidelines. The aim is to promote good practice, good education and co-ordinated policy for provision of services. At present this is being piloted in the North West at Bury, Bolton and Salford – following work with the NHS Modernisation Agency. A conference is intended in 12 months time for all stakeholders in this process.

    Clinical Networks
    The Epilepsy Interest Group has proposed a course in epilepsy with three tiers involving general paediatricians and epilepsy nurses, specialist paediatricians and paediatric neurologists respectively. This will be delivered at different centres. Items will include service provision, guidance for service provision, underwriting the quality and costings. It is hoped that this work will enhance networking in other fields. It is hoped that the change in Council to become more representative will aid a more uniform and unified clinical practice nationally. It is intended that audits can be carried out, with selected centres asked to audit specific aspects of practice. There were no questions on this section.

    Distance Learning Courses
    The President went on to say that the Distance Learning Course had been launched on 22 January. The material is first class. He thanked all the authors. The mechanism for certification, which depends on appraisal, still has to be finalised.

    Professor Besag asked whether trainees in fields other than neurology could take the Course. At present the Course is restricted to neurology trainees with an access to a supervisor, but may be of value to others, including established consultants, in future. The steering group will be looking at ways of opening the course more widely.

    Role of the Deanery Advisers
    Dr Newton emphasised the importance of the role of Deanery Advisers. He highlighted the need for them to monitor governance and audit in their region.

    Service Planning
    The President reminded the Association of the importance of service planning and the need for every member present to develop a plan for new posts if we were to achieve our aim of doubling the number of Paediatric Neurologists by 2010. Making a case has become more complex with the need to involve the Strategic Health Authority and PCT's and to define need by data on workload, waiting lists etc. Notes have been published in the spring newsletter and placed on the website. Informal advice is also available to individual members who are advised to contact the BPNA Secretariat initially.

    Secretariat
    Dr Newton expressed the Association's thanks to Mrs Philippa Rodie for her very efficient work on behalf of the BPNA and particularly in organising the annual conference.

    Leicester
    Finally, he reported the Review of the Leicester Review commissioned by the previous Regional Health Authority, whose criticisms had not included the BPNA. He thanked all those who had helped in the original Review.

  5. President Elect's Report
    Visits
    Dr Kennedy reported that the first round of visits was complete except for the Dublin Centres. It was desirable to finalise this as it might permit a link with Belfast for a training rotation. The report on training in Scotland is being written up at present. Approval is needed before the National Grid interviews. The second round of visits has now started. Nine centres have already returned information. The report on Wales has also been completed and training approved. An updated proforma has been circulated. It is likely that most reports will be completed without the need for a physical visit.

    Dr Lin asked in relation to training whether there was a process to inform each Deanery of the numbers of trainees needed. This is a particular concern when varying numbers meant that the training programme could not be established or maintained efficiently. Dr Kennedy replied that there was no Deanery specific information but the manpower document is updated by the Assistant Secretary annually. At present Deaneries plan the posts. Professor Neville reported that there were problems with the training post in North Thames and that monitoring would help. Dr Kennedy undertook to try to help. Dr Ferrie pointed out that there was now a reduced number of training posts in North Thames compared to last year. Dr Kennedy reported that there had been a meeting to discuss this especially in view of the threat by the Deanery to change neurology training posts to neurodisability training posts.

    Dr Green pointed out that the visits had always included neurodisability training assessments. Now there is a Neurodisability CSAC it would be important to look at the neurology training of trainees in disability. Dr Kennedy replied that it was difficult to comment until the Neurodisability CSAC is running. Dr Ramesh asked how to match trainee numbers. Dr Kennedy replied that there will be a need to lobby and that if problems cannot be resolved locally, to refer nationally. Dr Newton pointed out that one very important role for the Deanery Adviser is to establish positive links with the regional Paediatric Adviser and the lead for local training, whose title varies in different areas, to help maintain posts in paediatric neurology.

    Europe
    Dr Kennedy drew attention to his report in the autumn newsletter. He highlighted the courses for trainees, run by the EPNS and set up by Professor Neville. He also reminded us that paediatric neurology is a European subspecialty.

  6. Assistant Secretary's Report
    Manpower figures / workforce
    Dr Ferrie presented the current manpower figures, which show that the Association has grown by 11 to 301 members.

    He presented the list of proposed new members. All except one without a CV or seconder were welcomed to the Association. Dr Lin asked if new member's names would be published in the newsletter. This will be discussed with the editor of the newsletter. They will be placed on the website.

    He then presented the Manpower Document. It is proposed that this should be put on the website with restricted access to members of the Association through a password protected area. He highlighted the increase in consultant numbers from 50 to 56 full time posts and the decrease in academic posts from 13 to 11. Overall, the number of full time equivalents has increased by just over 5 to 62.9. He also highlighted at present new posts and retirements appear to total 4 per year but that 7 will be needed to achieve the goal of 120 posts by 2010. In addition, over the next 4 years, 7.3 SPR's are anticipated to gain their CCSTs annually but it is difficult to allow for the effect of possible part time working on the balance of available posts and trainees who have completed their CCST. At present there are still unfilled posts. Dr Sharples asked if neurology wanted more national training numbers, were they available. Dr Ferrie replied that there was no need at present for new posts. At the last National Grid 9 posts have been anticipated but only 7 centres had posts available.

    Dr Ferrie also produced data on outreach clinics describing an increase in the total number but due to an apparent increase in numbers of districts, the proportion remained the same at approximately 75%. Currently there are named leads for epilepsy in 30% of districts and for neurodisability in 25% of districts.

  7. Treasurer's Report
    Dr Cross presented the accounts. She pointed out that the Association is running at a steady annual deficit of £10,000 or more. This means that the amount carried forward this year from last year is reduced by £20,000. This is partly due to the increased cost of the journal but also due to the lack of any increase in subscription last year. She proposed that the annual subscription should be increased by £10 and anticipated a similar increase next year. Her proposal was seconded by Dr Newton and carried unanimously.

  8. Training
    National Grid
    Dr Forsyth described the forthcoming third round for the National Grid. Dr Verity asked if the selection process could include a representative from centres receiving trainees. Dr Newton pointed out that the panel members already represent some of the centres. Dr Forsyth highlighted current concerns about flexible trainees and about trainees wanting to enter training later in their SpR post. The draft policy of the RCPCH which tries to prevent entry after year 3 was discussed. The BPNA has objected to this. In theory it is still possible to train outside the Grid, but this is very difficult. Dr Green suggested that it would be worth contacting the lead Dean in neurology for a national agreement on training in adult neurology. Dr Forsyth agreed it was a problem for some Deaneries but it was felt best to leave this to local arrangements. Dr Sharples asked if a trainee can apply twice, to which Dr Forsyth replied that it was not yet possible.

    Assessment of Trainees / RITA
    The penultimate year assessment was held for the first time last year and effectively was equivalent to an external RITA. It was well received by trainees.

    Dr Cowan asked about sub-speciality training posts. These are under discussion, but the issues have not been resolved and these may have to be post CCST posts.

  9. Disability
    Standing Committee on Disability/BACCH Liaison
    Dr Smyth explained that Neurodisability is now recognised as a subspecialty with its own CSAC, which is in the process of being formed. She said that a new subspecialty group will need to be formed, that training centres will need a process of recognition, and that the Neurodisability group plan 10 National Grid training posts from 2005. Training posts outside the Grid will also be essential. There are issues concerning training in neurology for trainees in neurodisability and vice versa, which points up the need for very close liaison between the two specialities for their mutual benefit. Dr Newton re-emphasised this point. Dr Whiting said that the new speciality group is likely to be called The British Academy of Childhood Disability. At the moment they are seeking expressions of interest, so anyone wishing to be involved is invited to contact Dr Alison Salt. Finally, the training pack in disability is due to be placed on the BPNA website soon and hopefully on the RCPCH website as well. Dr Newton acknowledged the large amount of work done by Dr Whiting in preparing this pack.

  10. Audit/Governance
    Dr Whitehouse described the audit toolbox. He reported that the BPNA was trying to work out a process on the endorsement of guidelines. He also demonstrated the integrated care pathway for Guillain-Barré syndrome being pioneered by Dr Appleton in Liverpool. Circulated with papers at the AGM were two sheets to allow audit of the waiting times for EEG and MRI investigations. He highlighted new audits including the steroid and epilepsy audit and the very active role played by trainees, for example in the acute transverse myelitis study.

    Dr Kirkham reported on guidelines in progress including the NICE guidelines on epilepsy and Stroke guidelines under the aegis of the Royal College of Physicians. She listed the guidelines for dealing with acute neurological conditions including status guidelines and ones in development including non-traumatic coma and meningitis. For the latter she has amalgamated guidelines currently available from Great Ormond Street Hospital, Southampton and District General Hospitals, particularly an excellent one from Wakefield. She has pooled these and added a systematic review. It is intended the guidelines will be placed on the BPNA website for discussion. It is also suggested that GOSH guidelines for other conditions could be put on the website but these will not have been endorsed as they will not have gone through a governance process. All guidelines are still evolving and will need continual updating.

  11. Mac Keith Press
    Mac Keith Press reported the change in Editorship and the changed role for Dr Hilary Hart. Martin Bax has stepped down as Editor of the DMCN and has been appointed as Consultant Editor. He will continue to be a member of the editorial board and work on a range of projects including Mac Keith meetings. The impact factor for DMCN has increased to above 2 for the first time which means it is ranked 7th among paediatric journals worldwide, and second among paediatric neurology and disability journals, just below a quarterly review journal published by John Wylie. On the half life scale DMCN is 3rd among the 68 paediatric journals. Priorities for 2004 include speeding up the process of receiving and refereeing manuscripts, making DMCN available to less wealthy countries, developing a website and widening the range of books with the introduction of handbooks. Mac Keith would also like to widen its range of referees. All expressions of interest would be gratefully received.

  12. Meetings
    RCPCH
    The Neurology section of the York meeting will be on 31 March 2004.

    BPNA 2005
    The next annual meeting will be in London hosted by Great Ormond Street from 19-21 January 2005.

    BPNA 2006
    Bristol will host the meeting in 2006.

    BPNA 2007
    Edinburgh will host the meeting in 2007.

    Birmingham, Nottingham and Leeds all expressed interest in hosting the 2008 meeting.

  13. Any Other Business
    Reduced rates for retired members at the annual meeting
    Dr McCarthy had written to the President proposing that senior members should be able to attend the annual meeting at cost. Dr Newton agreed that this is an important issue. In fact the current meeting had been priced at cost. He proposed the Council should be allowed to consider this and come back with suggestions in the spring newsletter.

    Dr Newton closed the meeting by thanking members of the Association, the Council and the Executive. He passed on his best wishes to Professor Richard Robinson, Past President, on his retirement and to Dr Colin Kennedy on his assumption of the presidency.

    Professor Robinson proposed thanks to Dr Newton at the end of his three-year Presidency. He highlighted the enormous contribution he has made, the large amount of work that he has put in on behalf of the BPNA, and the adroit way on the BPNA's behalf that he has handled the difficult issues that have arisen.

  14. Next Annual General Meeting
    19 January 2005, Institute of Child Health, London.
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